Wetenschappelijke publicaties
Hier vind je een listing terug, van wetenschappelijke publicaties in Vlaanderen, op vlak van de psychosociale oncologie.
Deze lijst is allerminst exhaustief.
Momenteel zijn we nog in de startfase van de opbouw van deze listing. Je zal hier dan ook regelmatig nieuwe informatie zien verschijnen.
Heb je zelf op de hoogte van wetenschappelijke publicaties in Vlaanderen, laat het ons weten!
2011
Enzlin P, De Clippeleir I (2011). The emerging field of 'oncosexology': recognising the importance of addressing sexuality in oncology. Belgian Journal of Medical Oncology 2011, 44-49.
link naar artikel
2010
Rommel W, Grypdonck M (2010). Werkhervatting na kanker, een onderzoeksnota. Tijdschrift voor Sociologie 2010, 31, 57-81.
link naar artikel
2009
Bauwens S, Baillon C, Distelmans W, Theuns P (2009). The 'distress-barometer': validation of method of combining the distress thermometer with a rated complained scale. Psycho Oncology, online 30 sep 2008, Vol 8 issue 5 p 534-542 (may 2009)
Eelen S, Baillon C, Bauwens S, Distelmans W, Jacobs E, Vanderlinden L, Verzelen A. (2009) Burn out in oncology in Flanders, Belgium: first results of a study amongst 550 professionals in oncology. Psycho Oncology 18 (Suppl 2), S224-225, 2009.
Rchaidia L., Dierckx de Casterlé B., De Blaeser L. & Gastmans C. (2009). Cancer patients' perceptions of the good nurse: a literature review. Nursing Ethics, 2009, 16, 5, 528.
link naar artikel
Snauwaert C., Van Belle S. (2009). Slechtnieuwsgesprekken in de oncologie: shift van diagnose naar prognose. Tijdschrift voor Geneeskunde, 2009,65, 8, 343-347.
link naar artikel
Van Wesemael Y, Cohen J, Onwuteaka-Philipsen BD, Bilsen J, Distelmans W, Deliens L. (2009) Role and Involvement of Life End Information Forum Physicians in Euthanasia and Other End-of-Life Care Decisions in Flanders, Belgium. Health Serv Res. 2009 Sep 24.
2008
Baillon C, Bauwens S, Distelmans W (2008). The usefulness of the Distress-Barometer in early stage breast cancer patients, Psycho Oncology, 2008, 17, 6, 198.
Bauwens S, Baillon C, Distelmans W (2008). A multicenter evaluation by patients and doctors of a new rapid screening instrument for distress in cancer patients, the Distress-Barometer'. Psycho Oncology, 2008, 17, 6, 197-198.
Bernheim J, Deschepper R, Distelmans W, Mullie A, Bilsen J, Deliens L (2008). Development of palliative care and legalisation of euthanasia: antagonism or synergy? British Medical Journal, 2008;336:864-867.
Distelmans W, Bauwens S (2008), Palliative care is more than terminal care, Belgian Journal of Medical Oncology, Volume 2, issue 1, march 2008
Distelmans W, Destrooper P, Bauwens S, De Maegd M, Van de Gaer K (2008). Life End Information Forum (LEIF): professional advice and support at end-of-life issues, Psycho Oncology, 2008, 17, 6, 222.
Eelen S, Bauwens S, Distelmans W, Hensmans B, Vanderlinden L, Verzelen A. (2008) The Cédric Hèle Institute accomplishes a post academic training program in psycho oncology, Psycho Oncology, 2008, 17, 6, 274.
Drieskens, K., Bilsen, J., Van den Block, L., Deschepper, R., Bauwens, S., Distelmans, W., Deliens, L. (2008) Characteristics of referral to a multidisciplinary palliative home care team. Journal of Palliative Care 2008; 24 (3): 162-166
Van den Block L, Deschepper R, Bossuyt N, Drieskens K, Bauwens S, Van Calsteren, Deliens L (2008), Care for patients in the last months of life: the Belgian SENTI-MELC study, Archives of Internal Medicine, 2008
2007
Van den Block L, Deschepper R, Drieskens K, Bauwens S. Bilsen J., Bossuyt N., Deliens L.(2007), Hospitalisations at the end of life: using a sentinel surveillance network to study hospital use and associated patient, disease and healthcare factors, BMC Health Services Research 2007, 7(1):69
Van den Block L, Van Casteren V, Deschepper R, Bossuyt N, Drieskens K, Bauwens et al. (2007) Nationwide monitoring of end-of-life care via the Sentinel Network of General Practioners in Belgium: the research protocol of the SENTI-MELC study. BMC Palliat Care 2007; 6(1):6
2006
Bauwens S, Baillon C, Distelmans W, Theuns P (2006). The distress-barometer: the implementation of a rapid screening instrument for distress in oncology hospital practices, Psycho Oncology, 2006, 15, 2, 226-227.
Decoene E, Schrauwen W, Van Hauwaert A. (2006). A Multidisciplinary psychosocial pilotstudy in a University Hospital. Psycho-oncology, Vol.: 15 , 401-402 .
De Valck , C. ( 2006) . Omgaan met kanker : een ruimte-innemend proces . Huisarts Nu ,35, (2) 65-70.
Distelmans W, Bauwens S, Destrooper P (2006). Life End Information Forum-physicians (LEIFartsen): Improvement of communication Skills in End-of-Life issues among physicians, Psycho Oncology, 2006, 15, 2, 226-227.
Eelen S, Bauwens S, Vanderlinden L, Verzelen A, Hensmans B, Mathys R, Distelmans W (2006), The Cédric Hèle Institute, The National Institute for the Promotion of Psychosocial care in Oncology, Psycho Oncology, 2006, 15, 2, 233.
Libert Y, et al (2006). Les besoins psychosociaux et le soutien apporte aux patients atteints d'un cancer : une etude nationale belge. Oncologie, 8: 465-476.
link naar artikel
Maex, E. & De Valck , C. ( 2006). Key elements of communication in cancer care. In Schlag et al. ( Eds. ) Recent results in Cancer Research . 168,1-5.
Van den Block L., Bilsen J., Deschepper R., Van Der Kelen G., Berheim J. & Deliens L. (2006). End-of-Life Decisions among cancer patients compared with noncancer patients in Flanders, Belgium. Journal of clinical oncology 24: 2842-2848.
Background:
Incidence studies reported more end-of-life decisions with possible/certain life-shortening effect (ELDs) among cancer patients than among noncancer patients. These studies did not correct for the different proportions of sudden/unexpected deaths of cancer versus noncancer patients, which could have biased the results. We investigated incidences and characteristics of ELDs among nonsudden cancer and noncancer deaths.
Methods:
We sampled 5,005 certificates of all deaths in 2001 (Flanders, Belgium) stratified for ELD likelihood. Questionnaires were mailed to the certifying physicians. Data were corrected for stratification and nonresponse.
Results:
The response rate was 59%. Among 2,128 nonsudden deaths included, ELDs occurred in 74% of cancer versus 50% of noncancer patients (P _ .001). Symptom alleviation with possible lifeshortening effect occurred more frequently among cancer patients (P _ .001); nontreatment decisions occurred less frequently (P _ .001). The higher incidence of lethal drug use among cancer patients did not hold after correcting for patient age. Half of the cancer patients who died after an ELD were incompetent to make decisions compared with 76% of noncancer patients (P _.001). Discussion with patients and relatives was similar in both groups. In one fifth of all patients the ELD was not discussed.
Conclusion:
ELDs are common in nonsudden deaths. The different incidences for symptom alleviation with possible life-shortening effect and nontreatment decisions among cancer versus noncancer patients may be related to differences in dying trajectories and in timely recognition of patient needs. The end-of-life decision-making process is similar for both groups: consultation of patients and relatives can be improved in a significant minority of patients.
Van den Block L, Deschepper R, Drieskens K, Bauwens S, Bilsen J, Distelmans W, Van Der Kelen G, Deliens L, Van Casteren V. (2006) Monitoring end-of-life care via a sentinel network of general practitioners (GPs): a feasability study in Belgium, Palliative Medicine, 2006, 20(3):286.
Van den Noortgate N., Schrauwen W., Omgaan met levenseinde. De rol van inter-disciplinair samenwerken, Tijdschrift voor geneeskunde, Vol 61, n. 7, 546-551, 2005.
2005
Distelmans W, Bauwens S, Storme S, Tielemans L (2005) Palliative day care in Belgium: first observations. European Journal of Palliative Care 12, 4, 170-173, 2005.
Goossens G.A., Vrebos M., De Wever I., Stas M. Frederix L. (2005). Central venous access devices in oncology and hematology considered from a different point of view. Journal of Infusion Nursing 2005; 28: 61-67.
Razavi D (2005). Studie over de behoeften en organisatie van de psychosociale ondersteuning van patiënten met kanker en hun naasten.
nationaal onderzoek naar de psychosociale noden van kankerpatiënten, hoe de ondersteuning nu georganiseerd is en aanbevelingen voor de toekomst
Volume 1 - Studie over de psychosociale behoeften van patiënten met kanker en hun naasten - link naar volume 1
Volume 2 - Studie over de psychosociale moeilijkheden van kinderen met kanker en hun naasten - link naar volume 2
Volume 3 - Organisatie van de begeleiding van psychosociale behoeften van de patiënten met kanker - link naar volume 3
Schrauwen W. (2005) Omgaan in waarheid. Tijdschrift voor geneeskunde, Vol 61, n. 7, 525-529.
Verhoeven K., Crombez G. & Van Damme S. (2005) Angst voor terugkeer van borstkanker na genezing: de rol van somatosensore amplificatie en trekangst. Gedrag&Gezonheid. Vol. 33 (2005) 1.
This study investigates the fear of breast cancer recurrence and its relationship with trait anxiety and somatosensory amplification. Fifty-six former Belgian breast cancer patients participated in a questionnaire study which included the 'Fear of Recurrence Questionnaire' (Northouse, 1981), the 'Somatosensory Amplification Scale' (Barsky et al., 1988) and the 'State-Trait Anxiety Inventory' (Spielberger et al., 1983). Results indicated that the majority experienced fear of cancer recurrence. Participants who were more vigilant to somatic arousal, reported more fear of disease recurrence. Results are discussed in terms of the prevention of fear of recurrence.
Dit artikel kan opgevraagd worden bij het CHi.
2004
Anthierens S., Cosyns M. & De Maeseneer J. (2004). Knelpunten in de psychosociale hulpverlening bij kansarme kankerpatiënten. Een verkennend onderzoek, 2003-2004, in opdracht van de Vlaamse Liga tegen Kanker. Gent: Vakgroep huisartsgeneeskunde UZ Gent.
Methode:
Een verkennend kwalitatief onderzoek bij 25 kansarme kankerpatiënten, waaronder 13 allochtonen.
Resultaten:
De onderzoekers stellen vast dat communicatieproblemen tussen zorgverstrekker en kankerpatiënt een belangrijke barrière vormen voor een vlotte psychosociale hulpverlening. Verder loopt de samenwerking tussen de vele mensen die hulp verlenen aan kansarmen soms fout.
Bernheim JL, Distelmans W, Bilsen J, Deliens L. (2004) Antagonism or Synergy between Palliative Care and Euthasasia? The unique Belgian experience of Integral Palliative Care. International Association Bioethics, november 2004.
Distelmans W. (2004) De Federale Controle- en Evaluatiecommissie inzake de toepassing van de wet van 28 mei 2002 betreffende de euthanasie. Tijdschr voor Geneeskunde, 60, 3, 232-234, 2004
Distelmans W, Bauwens S, De Maegd M, Rooze M, Van de Gaer K (2004) Palliative day care in Belgium: from terminal care towards care for incurable patients. Palliat Med 18:375-376, 2004.
Maex, E. & De Valck,C. (2004) . Taking care of the terminally ill cancer patient : the communication compass- a model for communication in oncology . Annals of Oncology, 15, 215-519.
Mennes M., Stiers P., Vandenbussche E., Vercruysse G., Uyttebroeck A., De Meyer G. & Van Gool S.W. (2004). Attention and information processing in survivors of childhood acute lymphoblastic leukemia treated with chemotherapy only. Pediatric Blood and Cancer. Vol. 44, 479-486.
Methode:
Een onderzoek naar de cognitieve functies van jonge leukemiepatiëntjes, waarbij de aandacht uitgaat naar het effect van czs-profylase, een behandeling van het centraal zenuwstelsel voor kinderen met acute lymfoblasten leukemie. Deze behandeling blijkt een negatief effect te hebben op enkele aspecten van de informatieverwerking. Dit werd getest met enkele computertaken.
Resultaten:
De moeilijkheden kwamen tot uiting in de reactiesnelheid en niet in de accuraatheid van de antwoorden. Deze vaststelling sluit aan bij klachten van sommige ouders. Hun kind blijft op school gelijk presteren, maar moet meer moeite doen. Een therapie bestaat niet, pedagogische begeleiding op school kan wel aangewezen zijn.
Van den Block L, De Gendt C, Distelmans W, Bernheim J, Deliens L (2004). Kwaliteit van terminale zorg in Vlaanderen: een pilootstudie. Nederlands Tijdschrift voor Palliatieve Zorg 2004;4 (4):103-104.
Van den Block L, Deliens L, Bernheim J, Distelmans W (2004). Do we need conceptual frameworks in evaluating Palliative Care Services? Palliative Medicine 2004 May;18(4):339.
2003
Brans B., Van Den Eynde F., Audenaert K., Vervaet M., Van Daele K., Van Heeringen C. & Dierckx R.A. (2003). Depression and anxiety during isolation and radionuclide therapy. Nuclear Medicine Communications, 24, 881-886.
Dit artikel kan opgevraagd worden bij het CHi.
Bourgois J., Cocquyt V. & Van Belle S. (2003). Reïntegratie van borstkankerpatiënten door middel van sport en levensstijlbegeleiding. Gent: UZ Gent.
De Valck C. (2003). Responding to patient cues in a video simulated bad news consultation. Leuven: Acco
De Valck , C. ( 2003). Effectieve communicatie in de arts-patiëntrelatie: mogelijkheden en hinderpalen. Hospitalia, 47,3, 13-15..
Distelmans W, Bauwens S, Storme G, Tielemans L.(2003) Palliative Day Care in Belgium: Improving the quality of life in the terminally ill. Quality of Life News Letter. Fall Issue, 2003, 31, 7-8.
Goossens L., Vrebos M., Stas M., Evers G. (2003). Een poortkatheter binnen oncologie en hematologie anders bekeken: hoe ervaren patiënten hun poortkatheter? Oncologisch Tijdschrift 2003; 1: 4-11.
Background:
An ever increasing number of oncology patients require a long-term venous access, for safe administration of chemotherapeutic agents, blood, and parenteral nutrition as well as for blood sampling. Vascular access devices made a significant contribution to improving the quality of life of patients requiring long-term intravenous therapy. Despite all advantages, intravenous ports are associated with a substantial number of complications such as infection, thrombosis, sleeve formation and extravasation. These problems have been intensively studied in research and are very well-known to nurses. The subjective impression, however, of the patient confronted with his port in daily life, is less well-known by the caregivers. The goal of this survey was to collect the positive as well as negative experience of patients concerning their implanted device.
Methods:
In a prospective study, an convenience sample of 106 oncology and haematology patients at an outpatient clinic in Leuven (Belgium) was contacted to fill out a questionnaire.
Instrument: The questionnaire, based on previous research, had 4 questions. Patients were asked how long they had their catheter and whether they had already received chemotherapy through a peripheral vein. Two other questions asked if patients had encountered problems with their port and whether these had or have an effect on their quality of life. The patients had the opportunity to indicate positive as well as negative experiences with the device and its use.
Results:
The top three benefits were (1) venous access no longer required peripheral venipuncture, (2) less inconvenience during the administration of irritating solutions, (3) easy access. On the other hand, patients disliked most the visibility of the venous port and complained about site soreness.
Conclusions:
Nurses' perceptions of a port implantation have more implications for patients than nurses realise. Information before and after implantation can help patients cope. Knowing what to expect, can be helpful in a stressful situation such as cancer treatment. Good nursing care implies the ability to provide optimal care and maintenance of the device, to diagnose and treat port complications, but knowing the patients' point of view is an added value in the delivery of quality of care.
2002
Bauwens S, Distelmans W (2002). Psycho-oncologie et soins palliatifs. Neurone, vol 7, 7, 225-228, 2002.
Remie M. & Grol B. (2002). Van marginaal naar integraal. Psychosociale zorg voor mensen met kanker. Gedrag en Gezondheid: tijdschrift voor psychologie en gezondheid, 30(3), 223-231.
2001
Bauwens S, Distelmans W (2001). TOPAZ: first palliative day care centre in Belgium. The Hospice Bulletin, 9, 3:1-2, 2001
Bauwens S, Distelmans W, Storme G, Kaufman L (2001). Attitudes and knowledge about cancer pain in Flanders. The educational effect of workshops regarding pain and symptom control. Palliative Medicine, 15:181-189, 2001.
Braeckman J, Van den Enden H, Distelmans W (2001). Pain and the human equation. Vlaams Diergeneeskundig Tijdschrift. 70:32-35, 2001.
De Valck, C., Bensing, J., Bruynooghe,R., Hulsman,R.& Kerssens,J. ( 2001). Cue-responding in a video-simulated bad news consultation: exploring a stress hypothesis. Journal of Health Psychology, 6, 585- 596.
De Valck, C., Bensing,J. & Bruynooghe,R. ( 2001). Medical students' attitudes towards breaking bad news : an empirical test of the World Health Organisation Model. Psycho-Oncology, 10, 398- 409.
De Valck,C., Bensing,J., Bruynooghe, R. ( 2001). Cure-oriented versus care-oriented attitudes in medicine. Patient Education and Counseling, 452, 119- 126.
2000
Bauwens S, Distelmans W (2000). A new model for psychosocial care for cancer patients in Belgium. J Pain and Symptom Management, vol 20, 6, S88, 2000.
1990 - 2000
De Valck,C.& Van de Woestijne, K.P. ( 1996). Communication problems on an oncology ward. Patient Education and Counseling, 29, 131-136.
De Valck, C & Vinck, J. ( 1996). Health locus of control and quality of life in lung cancer patients. Patient Education and Counseling, 28, 179- 186.
Han, J.N., Steegen,K., De Valck,C., Clement,J.& Van de Woestijne, K.P. ( 1996). Influence of breathing therapy on complaints, anxiety and breathing patterns in patients with hyperventilation syndrome and anxiety disorder. Journal of Psychosomatic Research, 41, 5, 481-493.
van Heeringen K., Zivkov M. (1996). Pharmacological treatment of depression in cancer patients - A placebo-controlled study of mianserin. British journal of psychiatry 169 (4): 440-443.
Background:
Depression has a reported mean prevalence of 24% in patients diagnosed with cancer. However, little systematic research on the efficacy of antidepressants in patients with cancer has been performed.
Method:
The efficacy and safety of mianserin were studied in 55 depressed women with breast cancer (stage I or II and without known metastases), in a randomised, double-blind, six-week, placebo-controlled study.
Results:
Statistically significant differences in the decrease in score from baseline on the Hamilton Rating Scale for Depression and the number of responders, favouring mianserin, were present after 28 and 42 days of treatment. Significantly more placebo-treated patients prematurely terminated the study dire to lack of efficacy while the safety profile of mianserin was similar to that of placebo.
Conclusions:
Treatment with mianserin resulted in a significant improvement in depressive symptoms in cancer patients, and was well tolerated.
Vinck, J.& De Valck, C. ( 1996). Gezondheidspsychologie in de lift: een illustratie vanuit de psycho-oncologie. In: Vereycken, J., Cools, B. & Van Gael, M. ( Red.) De psyche als zorg. Klinische Psychologie in Vlaanderen. Pelckmans, Kapellen, 115- 129.
De Valck, C. ( 1990). De psycholoog op de oncologische afdeling: een werkmodel voor de praktijk. Tijdschrift Klinische Psychologie, 20, 1, 19-30.
Van Houdenhove, B. & De Valck, C. ( 1990). Psychosociale aspecten en begeleiding. In Demedts, M. ( Red.) Sarcoïdose. Garant, Leuven, 99-103.
Van Houdenhove, B. & De Valck, C. ( 1990). Psychosociale aspecten en begeleiding. In Demedts, M. ( Red.) Sarcoïdose. Garant, Leuven, 99-103.